So, where did we leave off? I think I was in Atlanta (sort of). Two good things came out of that trip to Atlanta. Well, one for sure good thing and one possible good thing. The absolutely good thing was that I got to spend three days with a great friend. We caught up on about 10 years worth of news. In the past ten years I think we had seen each other 5 or 6 times, tops. It was pretty great. I’m bad at letting people help me, but she was extraordinarily helpful. Everyone should have someone just like her to accompany them to important third opinions with doctors. Sometimes she heard them say things that I missed, sometimes she reassured me that I heard what I thought I heard, and she took amazing notes that I have already gone back to many times. Thanks JJW, you’re the best.
The other potentially good thing? A lead on a Naturopath MD Oncologist. We’ll see how that turns out in a couple of weeks. The doc is super far away, but does phone consults (for a bajillion dollars, of course). Hopefully it will be worth it.
Other than those two things, that cancer center was not what I hoped. They do have a great Naturopath MD on staff, I liked her a lot. The surgeon that I met with, however, was the least pleasant consultation that I have had yet. By far. Real far. The biggest red flag for me was that the schedulers set me up with an appointment to have a chemo port put in before I ever even met with a doctor. Um, hello, what? And they kept ordering tests for me. The trouble I had with that was that I just wanted to speak with the doctors first. Also, everything there was out of network for my insurance. It was not going to be cheap. Had I done everything they asked, I would have had a port, an EKG, a bone density scan and a CT scan. I’m sure that if I were headed there after having a really bad experience somewhere else, or feeling like I was ready to just jump into treatment, that would have been fine. That’s not where I was, though, mentally. So, the twenty people who worked there and told me that I had “made the right choice” by seeking treatment there, just sounded creepy to me.
Meanwhile, I started to feel not as great as I was feeling the last few months. I came home and started trying to catch up after being gone for four days, and I still haven’t caught up. How many days has it been now? Ha! I haven’t had any energy. It doesn’t help that I’m still coughing from that flu we had. I think the cough made me think I was just still getting over something. Then on this past Tuesday I had a PET scan (ordered by Moffitt oncologist who speaks very quickly but is still my favorite of the three that I auditioned). The good news is that I am not riddled with cancer or anything crazy like that. It is still contained in the one boob and one lymph node. The bad news is the scan showed that there is something wrong with my thyroid. (So, I’m anemic, and my thyroid is out of wack. If you see me at the kid’s school, sleeping on the sidewalk, maybe just scoot me into a spot where I won’t get stepped on.) Endocrinologist, here I come!
The other bad news (at least I’m taking it that way at this point) is that “standard of care” requires that 2/3 of my surrounding lymph nodes have to be removed. All because of that one lymph that went astray. It seems excessive to me, and there are clinical trials going on to determine if that is really necessary, but that doesn’t help me now. Add to that the fact that they won’t build my bionic boob yet because they want to make sure I don’t need radiation first, and I’m a little annoyed with the process at the moment.
I do like to bright side things, though, and I finally have a date for surgery. April 10th. Mark your calendars, cause’ we’re having a raging kegler on the 9th and I will be topless! Gotta get the most use out of these before one is gone! Obviously, all but the surgery date there is a joke. As long as my thyroid isn’t holding anything up, that’s the day.
I keep moving the goal line of my expectations, but it hasn’t reached the edge of the cliff yet, so there’s that! Actually, I still feel pretty stinking positive, maybe more than I did a month ago, maybe more than I should. Ha!