Last Wednesday was super stressful. Thursday was terrible and weird. Friday was worse than both. Today is almost normal, so I’ll write about it now. We’re all fortunate I was in too much pain to type on Friday.
I’ve been reading a lot about the mind body connection with breast cancer. I’m a believer. When I find myself getting anxious or stressed out I can feel the blood flowing to the tumor. I’m trying really hard to be mindful of what I am doing to myself physically when I go down my emotional rabbit hole(s). On Wednesday morning I was feeling great, then early in the afternoon I started to stress about something. It was a small thing, but then I picked up kids and they were both at their most intense. This got me really started up. By the time I was trying to handle the stress that showed up in the evening, well, let’s say all my coping strategies were used up. I felt blood rushing to my chest like a tidal wave. Then I started to feel pain. I tried to breathe my way out of it, but felt totally stuck.
Thursday morning I had a (previously scheduled) acupuncture appointment first thing. I thought for sure this would fix me. It did help, but by this time the pain was pretty intense. It was a chilly morning, so I didn’t notice that I just couldn’t get warm. I went home and took a nap. When I woke up, James was home for lunch and I had a fever of 101. Plus pain that felt like the worst mastitis ever possible (if you have not breast fed or have no boobs just take my word for it, this freaking hurts). I texted my go to TCM practitioner at TYM because I had just seen her for the acupuncture. She said she thought that, given the fever, it was an infection (why didn’t that occur to me?) and that if I didn’t want antibiotics she could treat me with herbs, but maybe I should call my boob doctor. I did call, and they put me on the books for 8:30 the next morning.
Friday morning at the doctor was not as I expected it would be. After the idea of infection was been brought up I had thought, “duh.” I figured I’d see the doc, get antibiotics for the week, and go back to my TCM for some probiotics next week (I would also like to say here that I avoid antibiotics like the plague and only use them for true infections. Because I would like them to be of some use to my children. You know, in future land.)
The doc and I chatted, I made boob jokes and she laughed. Then she took a look at the problem. Her whole demeanor changed. She started the ultrasound machine up. She took out her little tape measure. She used the word necrosis. She said she felt that the tumor was spreading (she may have said infiltrating, the oncologist uses this term), that one of my lymph nodes had also blown up, that she was going to do a biopsy right now. She said that I needed to stop thinking about what my plastic surgery options were because this was an emergency. She said I needed to start chemo immediately and have surgery sooner than planned and no reconstruction because there would be lots of radiation. I shook uncontrollably the entire time that she did the biopsy of my lymph node. I cried my eyes out.
In my car, after it was over, I called my husband and my mom. I told them both that I potentially had a very different diagnosis now, and also an appointment on Monday with an Oncologist. Obviously, I spread my worry all around and freaked everyone out. Of course, they want to know, but still.
I texted my TCM and she called me back. We talked about what the doc had said about necrosis. I couldn’t remember if the doc was saying it was necrosis or could be necrosis. Also, there was the fact that I never had time to ask if I should take antibiotics, just to rule out infection. I promised I would call the doctor with my follow up questions. To her credit, the doc responded by calling in the prescription for me. To my TCM’s credit, she sent me a message that she felt sure this was an infection, and told me to send daily updates. That made a huge difference for me, mentally.
By Monday morning my fever was finally gone. The oncologist examined me and agreed that it looked like an infection (at this point it was much less red, painful, and swollen), then he cancelled the order for my chemo. He also went over test results for my concern over rib pain. Everything came back normal. I even convinced him to order a mammaprint for me from my initial biopsy sample. It should tell me with a good bit of accuracy what my chances are for recurrence, and whether chemo will be a good move for me at all, like ever.
When the appointment was over I went to the beach and sat in the sun for 40 minutes, just breathing. Obviously, I need more of this type of thing in my life. Probably some better coping mechanisms as well, while I’m at it.